These are some of the main neuroscience-related patient-support organisations and initiatives on the island of Ireland.
Headway
Headway is an Irish registered charity and an internationally accredited brain injury services organisation that supports adults (18+) who are affected by brain injury.
Irish Heart Foundation
The Irish Heart Foundation are leading the way in the fight against heart disease and stroke in Ireland.
They campaign to influence government policy to improve care for patients and for real change for those affected by heart disease and stroke.
Muscular Dystrophy Ireland
Muscular Dystrophy Ireland (MDI) is a voluntary organization which was established in 1972 by a small group of people in the west of Ireland to support families who had a member with muscular dystrophy. Since then it has grown considerably and it now has a membership of over 750 members and a network of support staff throughout Ireland.
Epilepsy Ireland
Epilepsy Ireland was established in 1966 with the goal of improving the quality of life of people with epilepsy in Ireland.
Neurological Alliance of Ireland
The Neurological Alliance of Ireland is the national umbrella body representing over thirty not for profit organisations working with people with neurological conditions and their families. Neurological conditions affect the…
Dystonia Ireland
The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide.
Polio Survivors Ireland
Polio Survivors Ireland works to maintain the independence and dignity of polio survivors, supporting them at work, in the home and otherwise.
Huntington’s Disease Association of Ireland
If you are living with Huntington’s disease, at risk, or caring for a loved one HDAI is here to help. We can support you to access the health and social services you need, provide information to you and your health professionals, and champion your rights.
Irish Neurology Nursing Forum
The IRISH NEUROLOGY NURSING FORUM is an non-profit organisation established in 2022. Representing and promoting the vital role of Neurology nurses in Ireland. Membership is open to all nurses registered with…
HSE – National Rare Diseases Office
The HSE National Rare Diseases Office (NRDO) was established by the HSE in 2015. It serves as the national rare disease ‘coordination hub’ and the HSE main contact and driver of rare disease initiatives and projects
Guillain Barré Syndrome Support Group
Receiving a diagnosis of Guillain-Barré syndrome or CIDP can be a terrifying and isolating experience, bringing with it many questions and an uncertain future. GAIN is the only organisation dedicated to helping people affected by these conditions in the UK and Ireland.
MS Ireland
MS Ireland is the national organisation providing information, vital services and support to the MS community. We provide a wide range of specialised services and resources on a national, regional and local level.
Alzheimer Society of Ireland
The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. The Alzheimer Society of Ireland works across the country in the heart of local communities providing…
Rare Diseases lecture series at South Dublin Libraries
The Executive Librarian in South Dublin Libraries has produced a brochure to introduce and publicise a number of talks which are aimed at individuals with Rare Diseases in Ireland and their families
Ataxia Foundation Ireland
Ataxia Foundation Ireland (AFI) is the New Voluntary National Support Group for people affected by Friedreich’s Ataxia (The most common Genetic Ataxia) and up to 50 other Ataxia’s.
Migraine Association of Ireland
Migraine Association of Ireland are Ireland’s only patient charity providing support, education, information and reassurance to people suffering from migraine and other headache disorders.
Alzheimer Europe January 2022 newsletter
Alzheimer Europe January 2022 newsletter
Parkinson’s Association of Ireland
The Parkinson’s Association of Ireland is a charity, based in Dublin with branches throughout the country. Our aim is to assist people with Parkinson’s, their families and carers, health professionals and other interested people by offering support, a listening ear and information on any aspect of living with Parkinson’s.
Irish Epilepsy League
The IEL is a not-for-profit organisation, a chapter of the ILAE, dedicated to promote education, research and advocacy for people with epilepsy and health professionals dedicated to the care of…