These are some of the main neuroscience-related patient-support organisations and initiatives on the island of Ireland.
MS Ireland
MS Ireland is the national organisation providing information, vital services and support to the MS community. We provide a wide range of specialised services and resources on a national, regional and local level. Services include; Regional Community Worker programmes for one-to-one support; physiotherapy; symptom management courses; newly diagnosed sessions and the […]
Headway
Headway is an Irish registered charity and an internationally accredited brain injury services organisation that supports adults (18+) who are affected by brain injury. A bit more… We were founded in 1985 as a support group by families and interested professionals to address the needs of people with brain injuries and their […]
Neurological Alliance of Ireland
The Neurological Alliance of Ireland is the national umbrella body representing over thirty not for profit organisations working with people with neurological conditions and their families. Neurological conditions affect the brain and spinal cord and include many common conditions such as stroke, migraine, epilepsy and acquired brain injury as well […]
HSE – National Rare Diseases Office
The HSE National Rare Diseases Office (NRDO) was established by the HSE in 2015. It serves as the national rare disease ‘coordination hub’ and the HSE main contact and driver of rare disease initiatives and projects. The NRDO’s programme of work is strategically aligned to the National Rare Disease Plan […]
Irish Heart Foundation
The Irish Heart Foundation are leading the way in the fight against heart disease and stroke in Ireland. They campaign to influence government policy to improve care for patients and for real change for those affected by heart disease and stroke. As the national charity fighting heart disease and stroke […]
Muscular Dystrophy Ireland
Muscular Dystrophy Ireland (MDI) is a voluntary organization which was established in 1972 by a small group of people in the west of Ireland to support families who had a member with muscular dystrophy. Since then it has grown considerably and it now has a membership of over 750 members […]
Huntington’s Disease Association of Ireland
If you are living with Huntington’s disease, at risk, or caring for a loved one HDAI is here to help. We can support you to access the health and social services you need, provide information to you and your health professionals, and champion your rights. We will also work with […]
Migraine Association of Ireland
Migraine Association of Ireland are Ireland’s only patient charity providing support, education, information and reassurance to people suffering from migraine and other headache disorders. They provide free educational courses on self management and understanding migraine for people with migraine, and certified health professional courses for GPs and other HCPs. They […]
Ataxia Foundation Ireland
“Welcome to Ataxia Foundation Ireland (AFI), the New Voluntary National Support Group for people affected by Friedreich’s Ataxia (The most common Genetic Ataxia) and up to 50 other Ataxia’s. The organisation was founded by four people with Ataxia, to form the board of directors and trustees, we have recently increased the board to seven, […]
Irish Neurology Nursing Forum
The IRISH NEUROLOGY NURSING FORUM is an non-profit organisation established in 2022. Representing and promoting the vital role of Neurology nurses in Ireland. Membership is open to all nurses registered with the NMBI working in clinical practice in Neurology including all sub-specialties under this domain. To visit the INNF website please […]
Parkinson’s Association of Ireland
The Parkinson’s Association of Ireland is a charity, based in Dublin with branches throughout the country. Our aim is to assist people with Parkinson’s, their families and carers, health professionals and other interested people by offering support, a listening ear and information on any aspect of living with Parkinson’s. We currently receive […]
Polio Survivors Ireland
Polio Survivors Ireland works to maintain the independence and dignity of polio survivors, supporting them at work, in the home and otherwise. Our Core Objectives are to create awareness and provide information on the needs of polio survivors and on Post Polio Syndrome and to support and advocate on behalf of all polio […]
Rare Diseases lecture series at South Dublin Libraries
The Executive Librarian in South Dublin Libraries has produced a brochure to introduce and publicise a number of online talks which are aimed at individuals with Rare Diseases in Ireland and their families. Speakers and topics include the following: “Rare Diseases Ireland – The Background” -Ms. Vicky McGrath. “The Diagnostic […]
Guillain Barré Syndrome Support Group
Guillain Barré & Associated Inflammatory Neuropathies Receiving a diagnosis of Guillain-Barré syndrome or CIDP can be a terrifying and isolating experience, bringing with it many questions and an uncertain future. GAIN is the only organisation dedicated to helping people affected by these conditions in the UK and Ireland. We are […]
Irish Epilepsy League
The IEL is a not-for-profit organisation, a chapter of the ILAE, dedicated to promote education, research and advocacy for people with epilepsy and health professionals dedicated to the care of people with epilepsy in Ireland. The mission of the organisation is to ensure that health professionals, patients and their care providers, […]
Dystonia Ireland
The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group […]
Epilepsy Ireland
Epilepsy Ireland was established in 1966 with the goal of improving the quality of life of people with epilepsy in Ireland. Today, we provide a range of services across the Country from headquarters in Dublin and via our regional offices in Cork, Dundalk, Galway, Kerry, Kilkenny, Letterkenny, Limerick, Sligo and Tullamore. Vision Epilepsy Ireland’s vision is to achieve a society where no […]
Alzheimer Society of Ireland
The Alzheimer Society of Ireland is the national leader in advocating for and providing dementia-specific supports and services. Our vision is an Ireland where people on the journey of dementia are valued and supported and our mission is to advocate, empower and champion the rights of people living with dementia […]
