The HSE National Rare Diseases Office (NRDO) was established by the HSE in 2015. It serves as the national rare disease ‘coordination hub’ and the HSE main contact and driver of rare disease initiatives and projects
The Executive Librarian in South Dublin Libraries has produced a brochure to introduce and publicise a number of talks which are aimed at individuals with Rare Diseases in Ireland and their families
Alzheimer Europe January 2022 newsletter
Polio Survivors Ireland works to maintain the independence and dignity of polio survivors, supporting them at work, in the home and otherwise.
The Parkinson’s Association of Ireland is a charity, based in Dublin with branches throughout the country. Our aim is to assist people with Parkinson’s, their families and carers, health professionals and other interested people by offering support, a listening ear and information on any aspect of living with Parkinson’s.
Muscular Dystrophy Ireland (MDI) is a voluntary organization which was established in 1972 by a small group of people in the west of Ireland to support families who had a member with muscular dystrophy. Since then it has grown considerably and it now has a membership of over 750 members and a network of support staff throughout Ireland.
MS Ireland is the national organisation providing information, vital services and support to the MS community. We provide a wide range of specialised services and resources on a national, regional and local level.
Migraine Association of Ireland are Ireland’s only patient charity providing support, education, information and reassurance to people suffering from migraine and other headache disorders.
The Irish Heart Foundation are leading the way in the fight against heart disease and stroke in Ireland.
They campaign to influence government policy to improve care for patients and for real change for those affected by heart disease and stroke.
If you are living with Huntington’s disease, at risk, or caring for a loved one HDAI is here to help. We can support you to access the health and social services you need, provide information to you and your health professionals, and champion your rights.